For service users and carers

To view active projects in the Trust please visit: https://www.leedsandyorkpft.nhs.uk/research/latest/projects/

If you would like to find out more about participating as a service user, carer or member of staff in any of these studies, or you’d like to request this information in a different format, please contact our Research and Development Team by emailing research.lypft@nhs.net or calling 0113 855 2387.

Taking part in research often involves meeting with a researcher to answer questions or give physical measurements or samples, so that we can learn more about an area of health.

We would like participants to feel as comfortable as possible during these appointments. Following feedback that it would be helpful to know how to ask for reasonable adjustments and what type of adjustments can be requested, we worked with the Help from Experts by Experience for Researchers (HEER) group and the Service User Network (SUN) to create this video.

It is intended to open a conversation with all participants involved in our research to support the process of putting in place any adjustments that would make participants’ research appointments easier and more comfortable. The suggestions in this video are examples only, please ask about your individual needs and we will try to accommodate them.

We are very keen to hear from people with dementia and their carers to help us better understand this disease and find new ways to improve care and help people live well with dementia.

The National Institute for Health Research (NIHR) in partnership with Alzheimer’s Research UK and Alzheimer’s Society have developed Join Dementia Research, a service which allows people to register their interest in participating in dementia research and be matched to suitable studies.

Sign up to Join Dementia Research to find out what research you could take part in.

The service is aimed at people with dementia and their carers, but anyone with and without dementia over the age of 18 can sign up and people can register on behalf of someone else.

Study participants and a consultant psychologist explain why they became involved in mental health research and share their experiences of taking part at Leeds and York Partnership NHS Foundation Trust (LYPFT).

This video, produced by LYPFT and CRN Yorkshire and Humber, is aimed at health professionals, patients and members of the public to increase awareness of research.

00:00-00:14 1350 people took part in clinical research at LYPFT.
00:15-00:34 Why Liza decided to get involved in research.
00:34-00:58 Why Peter and Andrea decided to get involved in research.
00:59-1:17 How research assisted Lisa’s mental health recovery.
1:18-1:30 Dr Kouser Shaik explains how helpful mental health research participants are.
1:31-1:39 Lisa speaks about her experience in mental health research.
1:40-2:06 Peter and Andrea asks people to not feel shame for having a mental illness
2:07-2:15 Lisa explains that she has a better understanding of her disease by taking part in research
2:16-2:23 Peter and Andrea explain that first took part in research to help find cures.
2:24-3:01 Dr Kouser Shaik discusses how she finds research rewarding.
3:02-3:07 Lisa discusses what she has gotten from research
3:08-3:18 How to get involved in future research