Improving the experience of dementia and enhancing active life; a longitudinal perspective on living well with dementia.

What is this study about?

This is a national research study exploring what things help and what things hinder the ability of people to live well with dementia.

This information will build on the IDEAL cohort of 1550 people with mild-to-moderate dementia and 1286 carers, interviewed initially between 2014 and 2016 and followed up 12 and 24 months later.

The study will capture additional participants from groups that were underrepresented in the original cohort to enrich the data collected.

Who can take part?
  • People who agreed to take part in the first stage of this research
  • People who are under 65 years old or over 90 years old with a diagnosis of dementia
  • People who have a diagnosis of a rarer type of dementia (frontotemporal dementia, dementia with lewy bodies, Parkinson’s disease dementia)
  • People who have a mini-mental state examination (MMSE) score of 15 or above.
What is involved?

Participants will be visited by a researcher at home to complete a series of questionnaires across a three year period.

How to get involved?

Please contact Alicia Rodgers by email at or contact Holly Taylor by email at or call 0113 85 52320.