iCST study

Individual Cognitive Stimulation Therapy (iCST) for dementia in people with intellectual disability.

What is this study about?
Individual Cognitive Stimulation Therapy (CST) is a treatment for dementia that involves the individual with dementia taking part in activities such as a life story, discussion of current affairs, puzzles and being creative, which is designed to be mentally stimulating. There is evidence that group CST is effective in improving cognition in people with dementia in the general population. CST is now widely available for people with dementia in the general population but it is not routinely used in people with dementia who have learning disabilities.

Who can take part?
Service users:

  • Aged 40 or over
  • Premorbid mild or moderate Intellectual disabilities (based on clinical notes)
  • ICD-10 diagnosis of mild or moderate dementia (assessed using the diagnostic tool from the CAMDEX-DS)
  • Has a carer (paid or informal) who knows the person with dementia well and is willing to deliver the intervention
  • Is able to provide informed consent or where the participant lacks capacity, he/she has a personal consultee who has agreed to the participant taking part in the study.

Participants receiving anticholinesterase inhibitors as part of their usual treatment will not be excluded.

What is involved?
The intervention will involve carers delivering the activities, based on a manual, to the service user with dementia and Learning disabilities. Each session will last 30 minutes and carers and service users with dementia will take part in two sessions each week for 20 weeks (a total of 40 sessions).

How to get involved?
Please contact

Alicia Rodgers: aliciarodgers@nhs.net / 0113 85 52320
Samuel Bennett: samuel.bennett1@nhs.net / 0113 85 52741