90 minute assessments by a specialist team and we devote time to gain a shared understanding of your condition
individual or group programmes to help you recover
the opportunity for you to access a range of professionals, including 14 qualified NHS clinicians
liaison with your GP during your recovery
different options for treatment, including home-based rehabilitation and home visits for people whose lives are severely affected by CFS/ME
consultations and advice by video conferencing and telephone if needed
a private online forum for people who use our service
consistently good outcomes to improve your quality of life
Our high patient satisfaction results show we are valued by people who use our service.
More information on what to expect if you are referred into our service is available in the referrals section further down this page.
Our service is provided by a team of professionals, all with specialist expertise and includes:
clinician lead and matron
cognitive behavioural therapist
We are supported by a team of administrative staff. We also value the input and involvement of former patients and carers, who make a unique contribution, as volunteers, to developing our service.
92 service users and 19 carers responded to our 2016-17 survey
What people say about our service
Here are some comments from people who have used the Leeds and West Yorkshire CFS / ME Service:
“I feel in a better place now than I did before I started with the service. I felt listened to and cared about and I have left with strategies I can use for life.” (April 2017)
“The therapist has given me appropriate strategies to help me manage CFS/ME in the context of MY life. She has been easy to talk to and non-judgmental.” (April 2017)
“I finally feel like I have been listened to. There was an amazing amount of support offered and I was signposted onto other organisations at the end so I don’t feel like I no longer have any support.” (March 2017)
“The staff have been very helpful and professional throughout the sessions, our one-to-one sessions always started on time and were never delayed or postponed.” (February 2017)
“I have learnt techniques and practical skills to help me manage my condition. I have always felt part of the process as well as being given direction and advice in ways to help me. I have felt able to have some control in my recovery.” (November 2016)
“She has always come away from every session she has attended feeling better and that it was worth attending. She has found benefit in this and has spoken always about how great staff have been.” (November 2016)
We regularly seek feedback from service users and carers on their experience of using our service.
When asked how they would rate the service they have received from the Leeds and West Yorkshire CFS/ME Service during the 2016-17 financial year, over 90% of those who responded rated our service as ‘good’ or ‘excellent’.
Referrals into our service are made by your GP or another health professional involved in your care. They will need to make a referral to us that includes your recent blood tests and other essential information we require.
If you live outside Leeds, we will need to request funding from the clinical commissioning group (CCG) local to where you live following your referral from your GP.
There is no test to tell whether someone has CFS / ME. The diagnosis, therefore, is largely dependent upon the history of the symptoms and exclusion of other causes or conditions that cause similar symptoms.
We will make sure that other illnesses have been excluded by your GP or other health professional involved in your care before we offer you an assessment. This will mean you having some routine tests such as blood tests before referral to our service.
Once this stage is complete we will then write to you to request that you contact us to arrange a suitable time to come for your initial assessment.
You will be offered an appointment within 13 weeks from the date we receive your referral.
Areas covered by our service
Typically, our referrals come from Leeds and surrounding areas in Yorkshire, but we do accept referrals from outside this area if you can travel.
to make a referral by post, please download, complete and return a referral form to Leeds and West Yorkshire CFS/ME Service, Therapy Suite, 1st Floor, The Newsam Centre, Seacroft Hospital, York Road, Leeds, LS14 6WB
The Leeds and West Yorkshire CFS / ME Service is based in the Therapy Suite on the first floor of the Newsam Centre and can be contacted on 0113 85 56330 / 0113 85 56331 / 0113 85 56334 or by email: firstname.lastname@example.org.